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Family Advocacy Day, Washington DC, Mon. July 25
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AmalphieaWed Jul 06, 2011 11:09 pm
KA-513Thu Jul 07, 2011 1:46 am
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Amalphiea ()
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PostPosted: Wed Jul 06, 2011 11:09 pm    Post subject: Family Advocacy Day, Washington DC, Mon. July 25
Event starting Mon Jul 25, 2011 9:00 pm for one day
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Who: National Association of Children's Hospitals
What: Family Advocacy Day
Date: Monday, July 25
Event Start/End: First part: 1:00pm to 2:15pm, Second part: 6pm to 8pm
Venue: JW Marriott Hotel in Washington, DC
Venue Address: 1331 Pennsylvania Avenue NW · Washington, District Of Columbia 20004
Expected number of attendees: 175 (50 are children)
Requested number of characters: First Part: 5-10, Second Part 10-20
Secure changing/staging area: Yes
Joint Ops?: Yes
Refreshments: Yes, buffet dinner will be served for the evening part. We are welcome to partake.
Parking: The JW Marriott garage fills up quick - they will validate parking if there's room in that garage or, reimburse for parking nearby.

Comments:

1.*Vader is not needed for this event*

2. First Part: They will hold a session from 1:00 – 3:00 p.m. to educate the families on how Congress works and what they can expect from their Capitol Hill visits.

3. This year, they are thrilled to be joined by a 6 year-old actor named Max Page, who is perhaps best known for playing Darth Vader in a recent Volkswagon commercial which aired during the Super Bowl and received more than 40 million hits on YouTube. Max is going to be in his costume for the family briefing and we will be joining him. As of now, Max will have a grand entrance (Imperial March playing, us group following him in, etc.). He is going to teach the kids in the audience the proper hand technique for using the Force - apparently when he was making the commercial, folks at Lucas showed him the techniques and now he gets a kick out of showing other folks how to do it.

4. Second Part: This evening festival provides an opportunity for families to share their stories of survival along with their dreams for the future. The evening event is a carnival-type atmosphere with live music, face painting, jugglers, magicians, etc., and we will be working the crowd and just socializing with the kids as they enjoy the night, taking pictures, etc.

5. For many of these families, this trip to Washington is the first time they've traveled away from home because of the immense challenges that arise from caring for children with special health care needs.

6. Update: When you arrive go into the hotel main lobby (bottom floor). Look for the registration table. Ask for Tami Gandorf or Justin Beland. These are our contacts. They will show us to the changing suite.

7. For those arriving for the first part, please get there by 12 noon. We need to be ready before 1pm. For those arriving for the second part, if you can be there by 5 pm to be ready by 6pm, that would be great. They understand if some of us will be a little late.
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Last edited by Amalphiea () on Sat Jul 23, 2011 3:53 am; edited 1 time in total
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Amalphiea ()
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PostPosted: Wed Jul 06, 2011 11:10 pm    Post subject: Reply with quote

I will be taking off work early to attend this very special event.
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PostPosted: Thu Jul 07, 2011 12:48 am    Post subject: Reply with quote

This sounds incredible. Right now I'm not sure if I can make it with what should be happening at work that week. I should know a few days before hand.

Anyone know what the closest Metro stop would be as an alternative to driving?
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PostPosted: Thu Jul 07, 2011 12:56 am    Post subject: Reply with quote

Metro Center going out the 13th & F street exit.
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PostPosted: Thu Jul 07, 2011 1:46 am    Post subject: Reply with quote

I should be good to go with this event, at least for the second part. There's a good chance that I can get at least the afternoon off to attend for the entire event. Depending on if I can get it approved in time, there's a possibility I may be going Imperial. If that does happen, I will advise as soon as possible for planning purposes.

Also, out of curiosity, are we staying on-site for the two(ish) hour gap between event sections?
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Amalphiea ()
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PostPosted: Thu Jul 07, 2011 2:03 am    Post subject: Reply with quote

Staying on site between the 2 shifts is up to you. I won't be able to make it there until the second shift.
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KA-513 ()
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PostPosted: Thu Jul 07, 2011 2:12 am    Post subject: Reply with quote

ok, cool.
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PostPosted: Thu Jul 07, 2011 4:39 pm    Post subject: Reply with quote

I'll be there for both, so we can find something to do in between.
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PostPosted: Tue Jul 19, 2011 10:11 am    Post subject: Reply with quote

I'm in for sure now. I'll be leaving work around noonish and won't be there until the later part. I can most likely get there around 3-4 depending on traffic/the metro.

What all do I need to know since this is my first experience trooping and I've really got no idea what to do or what to expect.
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PostPosted: Tue Jul 19, 2011 1:06 pm    Post subject: Reply with quote

The usual thing is: We show up about an hr before an event. You either already have a meeting place, someone will be waiting for you, or you call your contact when you get there. You then go to where ever we're changing, hang out, change, and get ready. We usually wait for someone to come get us, we go out, get mobbed, take pics, do silly poses, raise money for charity, make families happy. We then go pack up our stuff, usually find someplace to hang out and grab a bite. We're done. Smile
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Grubbzilla ()
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PostPosted: Tue Jul 19, 2011 3:29 pm    Post subject: Reply with quote

Do we have a meeting place and time yet?
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PostPosted: Fri Jul 22, 2011 8:13 pm    Post subject: Reply with quote

We are meeting in the hotel lobby at the registration table. If you are attending the second part, then arrive by 5pm to be ready by 6.

When you arrive, I will explain everything you need to know about trooping. Very Happy
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PostPosted: Fri Jul 22, 2011 10:10 pm    Post subject: Reply with quote

That's better than the "Hey! Jedi! Get out there!" that I got! lol j/k Wink
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PostPosted: Sat Jul 23, 2011 6:04 am    Post subject: Reply with quote

Yeo Kero wrote:
That's better than the "Hey! Jedi! Get out there!" that I got! lol j/k Wink


And you did just fine. Wink
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PostPosted: Thu Jul 28, 2011 11:43 pm    Post subject: Reply with quote

Here is the thank you letter that Bryan received from the organizer.

"Hi Bryan,

HUGE thanks to you and your group for schlepping to DC for Family Advocacy Day. The whole staff really appreciates you guys being there and your presence made the event highly memorable.

Here are some photos of your group with Max during the briefing:
https://picasaweb.google.com/nachrinach ... dvocacyDay
Feel free to use any of them as you see fit, but where possible please give photo credit to Bonnie Velazco - she volunteered her time to take the pics, so we're trying to get her name out there as much as possible.

Also, as proof of how much of an impression you made, you're popping up in a lot of the hospital's blogs about the event, like this one:
http://childrenshospitalblog.org/childr ... ngton-d-c/

I'll send these along as I get them.

Again, thank you so much for helping us out, and please convey my thanks to the rest of the Garrison.

Best,

Justin B.
Director, Advocacy Outreach and Mobilization
National Association of Children's Hospitals"
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